Tag Archive: #chordoma

Finding myself in the Caribbean Sea

We’re on a sail boat in the Caribbean Sea, off the shore of Vieques, the day is windy and the water is a little choppy. It’s a beautiful day for sailing and I’m surrounded by the best of humans, starting… Read more >

I’m okay and that’s okay!

I didn’t do my usual birthday post. August 1st came and went. I thought about it, but wasn’t motivated. It’s not that I am depressed, or maybe I am, I’m just not sure what to say. Then I wrote this… Read more >

Patience+Grace

It’s been a long road, far longer than I expected. My therapist consistently reminds me that I need to give my body the grace to heal and have patience with the process. Fuck! With that in mind, this long road… Read more >

Champagne Friday

I’m a goal centered person. I like to know what the end is and what success looks like. This mindset is a challenge given the health challenges that have found me. Today I’m thinking about how to shift that mindset…. Read more >

Voldemort

Let me start by admitting I love the Harry Potter books and movies. My children were the perfect age to grow up with them and it was a meaningful thing for us to share. So if you aren’t a fan,… Read more >

Escape

You can escape, but you can’t escape reality. We have been talking about working from our family home in Vermont, during the fall, for a year now. At times I was emphatic about it. But as the fall approached, I… Read more >

Tethered Balloons: Vanity, Scans and Fear

I’ve been home from the hospital now for over a week, settling back into my life, back into work and figuring out how to deal with my new reality. There are a few things that follow me around like balloons… Read more >

Not what I wanted to hear….

I got some good news on Friday. I got some disappointing news on Friday. I had been telling myself to prepare for something, but the something still caught me by surprise. Now, I’m working it out mentally and emotionally. It… Read more >

The new me?

I have been so amazed by the love and support from my last post. The only thing that seems appropriate is a humble… Thank you! In the spirit of transparency, I’m sitting here on the eve before surgery to remove… Read more >